cystic fibrosis center
Dayton Children’s Cystic Fibrosis Center is accredited by and follows care guidelines from the National Cystic Fibrosis Foundation.
Information about the cystic fibrosis center
Our patients include newly diagnosed infants, children and teens, and even adults who have been living with cystic fibrosis for decades.
Dayton Children’s Cystic Fibrosis Center has also received special recognition from the foundation as the recipient of the Quality Care Award, recognizing outstanding quality improvement processes and accomplishments. The award recognizes a sustained commitment to quality improvement resulting in improved clinical outcomes.
your visit to the CF Center
The Cystic Fibrosis Center is staffed each week by the same pulmonologists, certified nurse practitioner, nurses, respiratory therapists, social worker, pharmacist and registered dietitian. This allows for you and your child to get to know the team and have a consistent continuum of care from visit to visit. Access to psychology support and physical therapy is also available. Check-ups are usually scheduled every one to three months for patients with cystic fibrosis.
Patients receive the following on a regularly scheduled basis:
- Pulmonary function tests
- Lab tests
- Imaging studies
- Medication review
- Equipment checks
- Nutrition assessment
- Support from a social worker
If your child ever needs to be admitted to the hospital due to complications with their CF the clinic team will work closely with the inpatient team to ensure consistent care.
home care for CF patients
Our team works closely with local home care companies, including the Children’s Home Care of Dayton to make sure that families have all the equipment and supplies needed, and we perform equipment checks to ensure that everything is working properly. We provide a respiratory therapy assessment to ensure that the equipment and techniques patients are using for airway clearance are adequate. We also provide nutritional assessments and support as part of regular care.
adult cystic fibrosis program
When a CF patient turns 17 we will begin the transition process for adult care of their diagnosis. We collaborate with Miami Valley Hospital to ensure it is a smooth transition. The entire transition will last until they are 21.
education and resources
Our clinic provides one-on-one education to help families learn about cystic fibrosis and how to care for their child at home. For more information or to make an appointment, please call pediatric cystic fibrosis nurse coordinator at 937-641-5582.
Dayton Children’s also provides the Family Support Resource Directory. Search the directory for a list of support groups, camps and other resources for kids with cystic fibrosis.
CF clinical trials
The Dayton Children’s Cystic Fibrosis Center is part of the Cystic Fibrosis Foundation Therapeutic Development Network, which allows our patients to participate in clinical trials of new medications and therapies to improve the lives of people with CF. Also, the clinic hosts educational events to help parents and children connect with others who are going through similar experiences. Learn more
CF newborn screening program
Each baby born in a U.S. hospital is given a blood test as part of this country’s Newborn Screening (NBS) Program. The goal of this test is to identify whether the baby has certain health conditions, including cystic fibrosis. If identified early, many of these conditions can be treated before they cause serious health problems. If your child tests positive for CF, you will receive a call from one of the state’s six hospitals that provides follow-up testing which includes Dayton Children’s.
adult cystic fibrosis transition program
Cystic fibrosis is a lifelong condition. Since patients are diagnosed either at birth or at a young age, their pediatric pulmonary care team becomes a regular part of their life. As kids transition into adulthood we want to ensure that they also have a smooth transition for their care related to their CF diagnosis.
The adult cystic fibrosis program is similar to the pediatric program. Patients meet with a team in clinic, have many of the same tests and procedure, and are seen as recommended by the cystic fibrosis foundation or more frequently as needed. Adult clinics are held every Monday afternoon.
what does transition mean?
Our view of transition is that it is a change that happens over a long period of time, not overnight. It is not just a “transfer” of a patient’s medical records to an adult physician when they turn 22. There are several steps involved, and we will help patients get ready to take charge of their health care as one part of their transition to adulthood.
transition timeline
The policy of Dayton Children’s and Miami Valley Hospital is that the final transfer of care must occur by age of 22 years. Be assured that our pediatric and adult cystic fibrosis providers are in regular contact to coordinate these changes and support you and your family during this time.
contact us
For more information or to make an appointment please contact Jenny Ingle, DNP, RN 937-641-5582
After hours, call 937-641-3000 to reach Dayton Children’s Hospital operator and ask for Adult CF provider on call.
here when you need us
Whether you’re looking for the right provider, ready to make an appointment, or need care right now—we’re here to help you take the next step with confidence.
