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patient story

Eric Mustaine

Eric's story: surrounded by the best care

patient name: Eric Mustaine

age: 8

seen in: neurosurgery and hematology/oncology

providers: Dr. Lionel Chow


When 7-year-old Eric Mustaine hit his head while kicking a ball at his sister’s softball practice, his parents, Sarah and Eric Sr., thought it was nothing serious. He wasn’t one to complain, and after some ice and rest he seemed fine. But the next morning, things changed. At school, Eric had a severe headache and started vomiting. Sarah, who is also a nurse, thought it may be a concussion. She reached out to a trusted colleague, who encouraged her to head to the emergency department just to be safe.
That decision would prove lifesaving.

answers in the hardest moment

At Dayton Children’s south campus, Eric’s initial exam looked normal. But the provider explained the pros and cons of doing a scan and left the decision up to Sarah. She chose to go ahead. Within the hour, their family’s life turned upside down.

“It took a long time for them to come back to our room, and I kept getting more nervous. When they came in and they had tissues, they had a notebook and everything, I just knew it was something bad,” Sarah remembers.

The CT scan revealed a mass in Eric’s brain. By the time the care team had come into Sarah and Eric’s room, they had called neurosurgery, started a plan, and arranged to transfer Eric to the main campus intensive care unit.

a team that felt like family

Once admitted, Eric and his family met with their pediatric neurosurgeon. The pediatric neurosurgeon explained the MRI and treatment plan in detail and promised to treat Eric as if he were his own son. At the same time, child life specialist, Jamie, gently prepared Eric for what was ahead, using kid-friendly language to describe the surgery. An ICU nurse, Ben, made sure Eric felt safe, even staying after his shift to play video games and personally walk Eric to surgery so he saw a familiar face in a scary situation.

“Knowing the people around us cared about Eric too, I was like ‘OK, we’re okay.’ We have a whole group of people here that are loving him as much as I do, and it’s going to help us get through this,” Sarah said. “It truly felt just like a safe second home.” 

skilled surgery, personal support

The next day, Eric’s first pediatric neurosurgeon was join by pediatric neurosurgeon Shobhan Vacchrajani, MD, PhD, FRCSC to remove the mass and send it for testing. While the surgery went as planned, for Sarah and Eric Sr., the waiting felt endless, and the scariest part lay ahead. Friends and colleagues from Dayton Children’s stopped in the waiting area to pray, bring them comfort. Eric woke up from surgery unable to move the right side of his body, unable to stand, and had difficulty speaking. 

“They explained these were all common complications to surgery, but it is still shocking and so hard to see your child like that,” Sarah said. 

To help Eric start to rebuild those connections and regain his ability to walk and speak more clearly, he started working with inpatient rehabilitation. 

A couple days after surgery, the results of the testing came back: Eric had medulloblastoma, a rare and fast-growing brain tumor that mostly affects children and teens. 

expertise and compassion from the neuro-oncology team

Lionel Chow, MD, PhD, joined Eric’s care team as his neuro-oncologist. Dr. Chow patiently and thoroughly explained the type of tumor and the initial plan to treat Eric. This was incredibly difficult news for the Mustaines, and Dr. Chow and the rest of the care team once again surrounded the Mustaines with support, encouragement and expertise.

“Dr. Chow was spending what felt like an unlimited amount of time with us; he made us feel like we were his only patients” Sarah said. “I just felt really confident that Eric had the best people and teams surrounding him.”
Dayton Children’s neuro-oncology program includes specialists from hematology/oncology (including Dr. Chow and a nurse coordinator), neurosurgery, neurology, endocrinology, psychology and more. The nurse coordinator helps bring together all these different experts to make treatment as seamless as possible and help manage all potential side effects a child may have. 

undergoing treatment

For Eric, treatment would include six weeks of radiation, a month to recover, and then almost a year of chemotherapy. Proton radiation is less available than standard radiation, with fewer than 50 centers in the United States. Luckily, a neighboring children’s hospital offers this treatment, and Eric’s nurse coordinator, Kari, closely collaborated with that team to coordinate Eric’s needs. Once Eric was done with radiation, he returned to Dayton Children’s for the rest of his treatment.

back on the field

Eric finished treatment in July 2025, and is back to playing every sport imaginable, laughing with his sister, doing all of Michael Jackson’s dance moves, and cheering on his favorite team, the Buffalo Bills. Seeing Eric back on the soccer field recently was an emotional moment for the Mustaines. 

“He couldn’t even stand on his own just months ago, and now to see him running around with kids his age and not being able to tell how much he has struggled to get back there. He is so strong and has had such a positive attitude about it all. He’s always used where he’s at like motivation to continue to get better.” 

no signs of disease

Eric finished treatment in July 2025, and is back to playing every sport imaginable, laughing with his sister, doing all of Michael Jackson’s dance moves, and cheering on his favorite team, the Buffalo Bills. Seeing Eric back on the soccer field recently was an emotional moment for the Mustaines. 

“He couldn’t even stand on his own just months ago, and now to see him running around with kids his age and not being able to tell how much he has struggled to get back there. He is so strong and has had such a positive attitude about it all. He’s always used where he’s at like motivation to continue to get better.” 

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