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family support resource directory

Many times a child’s ongoing medical conditions often require additional resources to assist parents and caregivers. With our Family Support Resource Directory, you can search resources that span over the 20-county area that Dayton Children’s serves. You can quickly connect to local, regional and national resources to help you locate information about education, healthcare, financial, transition, recreation, networking, future planning and more.

This guide is organized to help you find the information that you need:

  • To the right are pages specific to parents, professionals and teens. This may be a good starting point for those new to our directory.
  • To the left is a list of categories that our resources cover.
  • Finally, below is a search bar specifically for our Special Needs Resource Center that you can tailor to your county or specific needs.

In addition to the resource center, we also offer the complete KidsHealth Library to help parents learn more about a specific condition. Information is given in easy-to-understand terms and in many cases available in Spanish as well as English.

We encourage you to explore and feel free to add resources that are currently not included by emailing FRC@childrensdayton.org. If you can’t find what you are looking for, please don’t hesitate to contact our MeadWestvaco Family Resource Center at (937) 641-3700.

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National Heart, Lung, and Blood Institute, National Institutes of Health- NHLBI Health Information Center

Resource Category - support organization, support group

Specialty or Condition - heart, blood disorders, other

Description

The National Heart, Lung, and Blood Institute (NHLBI) provides information for research, training, and education programs to promote the prevention and treatment of heart, lung, and blood diseases.

contact information

address

PO Box 30105, Bethesda, Maryland, 20824-0105
Map & Directions

email

nhlbiinfo@nhlbi.nih.gov

301-592-8573 view website

National Institute of Diabetes and Digestive and Kidney Diseases

Resource Category - support organization

Specialty or Condition - diabetes, kidney, other

Description

The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) conducts and supports medical research and research training and disseminates science-based information on diabetes and other endocrine and metabolic diseases; digestive diseases, nutritional disorders, and obesity; and kidney, urologic, and hematologic diseases, to improve peoples health and quality of life.

contact information

address

9000 Rockville Pike, Bethesda, Maryland, 20892
Map & Directions

email

healthinfo@niddk.nih.gov

1-800-860-8747 view website

National Jewish Medical and Research Center

Resource Category - support organization

Specialty or Condition - heart

Description

National Jewish Health is known for treatment of patients with respiratory, cardiac, immune and related disorders and research.

contact information

address

1400 Jackson Street, Denver, Colorado, 80206
Map & Directions

877-225-5654 view website

National Multiple Sclerosis Society

Resource Category - support organization

Specialty or Condition - other

Description

The National MS Society offers an extensive variety of programs, services, resources and connection opportunities for people living with and affected by MS, including family members, caregivers and other members of their support systems.

contact information

1-800-344-4867 view website

National Rehabilitation Information Center

Resource Category - support organization

Specialty or Condition - limited mobility, muscular dystrophy, other

Description

The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability and Rehabilitation Research (NIDRR.). They collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDRR.

contact information

address

8400 Corporate Drive, Landover, Maryland, 20785
Map & Directions

email

naricinfo@heitechservices.com

800-346-2742 view website

National Society to Prevent Blindness

Resource Category - support organization

Specialty or Condition - visual impairments

Description

Prevent Blindness works to make sure that everyone has a chance to enjoy a lifetime of healthy vision, starting in infancy and childhood. They educate families, support research, and advocate for access to care.

contact information

address

211 West Wacker Drive, Suite 1700, Chicago, Illinois, 45415
Map & Directions

email

info@preventblindness.org

1-800-331-2020 view website