The Craniofacial Center

• Ask your child’s primary care provider to fax us records about your child’s overall health and growth. Our fax number is 937-641-3107.
• Provide any test results related to your child’s condition, including CT (computed tomography) scans and X-rays. Bring copies from your child’s doctor or ask the doctor to fax them. This avoids repeating tests.
• Check with your insurance company to ensure Dayton Children’s physicians are included. 
• Check out our appointment checklist to help you prepare. 

• Test results related to your child’s condition, if your primary care provider has not sent them already. 
• Medicines or a list of them. Include non prescription items like vitamins. Include the name, dose and instructions.
• Forms you need to have signed by our providers. For example, any school forms or FMLA forms.
• Drink and snack options, diapers (if necessary), a favorite toy or distraction devices for your child in case the appointment lasts longer than expected.
• A list of questions you would like to ask our care team. 

• At the first visit, a craniofacial pediatrician will examine your child. This initial visit will last two to three hours. 
•  The doctor will explain your child’s diagnosis and plan their overall care. If your child is old enough to understand, the doctor will make sure to talk to your child about what is going to happen next.
• A medical photographer will ask to take photos for your child’s medical record. This helps show how your child changes with time and after surgeries.
• You will visit with your craniofacial nurse to start learning about your child’s care. Our nurses also coordinate all appointments.
• You will meet with a social worker, who helps your family deal with the challenges of your child’s condition. The social worker connects you to support services and helps plan for a hospital stay. 
• Your child may see other specialists during their visit, depending on their age and needs. We recommend meeting with dentistry, ENT, pulmonary, anesthesiology and the PICU staff before surgery to learn more about what you can expect. 
• If your child has difficulty feeding, please let a team member know when you are planning to feed your child during your visit. We will ask our feeding specialist to come observe, which will help us identify what the problem is and how we can help.
• To confirm the diagnosis for some children, we may recommend testing their blood or saliva to look for changes in genes. 
• During your visit, we try to answer all of your questions. Please ask if anything is not clear.
• We will also talk with you about applying for coverage through the State of Ohio’s Children with Medical Handicaps Program (BCMH). This program serves children with special health care needs by providing care coordination and supplementary insurance coverage
• Each provider who sees your child will record a clinical note that will be part of your child’s chart. We will send a copy to your primary care provider.
• We schedule your child’s appointments so they can see as many specialists in one day as possible.
• Most children have three appointments, but your child may have only one or multiple visits depending on the complexity of the case. Our goal is to provide personal, coordinated care from the specialists your child needs.
• You will have some waiting time throughout the day. You may want to bring a snack or visit our play spaces on our main campus. 

• We will make sure you leave the appointment with detailed instructions about what will happen next. 
• We will want to see your child regularly to see how he or she is responding to the treatment plan and recommend additional therapy or testing if needed. We will schedule follow-up appointments at the end of each visit. These appointments usually take between one and two hours.
• We offer telehealth/virtual visits for some follow-up care and consults. 

You can reach our nurses between clinic visits at 937-641-3898.

Here are some tips to help your child feel more comfortable about their upcoming visit:

• Listen to your child and be honest about their care plan and what may hurt.
• Use short, simple terms your child knows. Do not go into too many details, as this can overwhelm most children. 
• While our pain management staff will be at your side, reassure your child that if something hurts, there are ways to help ease the pain, including medicine, relaxation, listening to music and playing games. We offer a wide range of entertainment options and distraction devices. 
• For younger children, try using one of your child’s toys, such as a doll or stuffed animals to show what will happen and encourage them to ask questions and talk about their feelings.
• If your child doesn’t want to talk about the hospital stay, stop and try again later. Do not force the subject. 
• Encourage your child to bring toys or activities from home to play with during their appointments and hospital stay.

You will receive a patient and family binder with details about the care team, procedures and other details to help guide you through answering questions your child may have.

Get checklists, resources, and helpful tips for before, during, and after your visit to Dayton Children’s—so you know exactly what to expect.