Media Release: Family Advocacy Day 2011

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Progress for Children’s Health Threatened by Proposals to Cut Medicaid, Training for Pediatricians

07-20-2011 (Dayton, OH) -

One Dayton area family is bringing their story of heartache and hope to Washington this month to help Congress understand the importance of protecting pediatric care in face of growing budget concerns. Bailey Allen and her mother, Angie, are among those traveling to the nation’s capital to bring attention to potential new barriers to pediatric health care as part of the National Association of Children’s Hospitals (N.A.C.H.) Family Advocacy Day.

The Allen family learned the value of access to quality pediatric care through firsthand experience. At 6 weeks old, Angie found a lump on the bottom of Bailey’s right foot.  After surgery to remove the tumor and to run tests to see if it was cancerous, it was determined that Bailey’s tumor that was congenital fibrosarcoma of the right foot. Emmett Broxson, MD, physician in the hematology/oncology department at Dayton Children’s delivered the news to Angie. Bailey’s cancer was rare; a slow growing tumor present before birth, but Dr. Broxson and Bailey's orthopedic surgeon were confident Bailey would go through chemotherapy and not have to amputate her foot. Bailey went through nine months of aggressive chemotherapy and was in the hospital for many days. Bailey’s last treatment was December 28, 2000. She was 18 months old. Today, Bailey is active in soccer, softball, dance and basketball. Watching her you would never know she was once a cancer patient who may have lost her right foot.

“Receiving care from the experts at Dayton Children’s changed my child’s life,” said Angie. “All children deserve to have access to these services. We hope sharing our story will help policymakers recognize the need to protect and preserve quality health care for kids.”

Although decades of advocacy have yielded strides that have improved children’s access to coverage, the infrastructure that ensures access to care has sustained serious blows in 2011. The Obama Administration’s fiscal year 2012 budget called on Congress to eliminate funding for the Children’s Hospitals Graduate Medical Education Program (CHGME), a federal program that helps children’s hospitals train 40 percent of all pediatricians and 43 percent of pediatric specialists.

In addition, proposals to slash funding for Medicaid, the largest health care program for children in the country, have gained traction. Congress is discussing proposals to cut the program’s funding by $1 trillion over the next decade and impose a cap on the amount the federal government can contribute.

“Half of the children who seek care at children’s hospitals are insured through Medicaid,” said Vicki Giambrone, vice president of marketing and external relations at Dayton Children’s. “Although budget realities are stark right now, we should not seek to balance budgets at the expense of our youngest and most vulnerable patients.”

Survey data show that few people fully understand the extent to which Medicaid is a children’s program. Medicaid is most often associated with nursing home care or care for the disabled. However, over 50 percent of the patients at Dayton Children’s are covered under Medicaid and, according to the Centers for Medicare and Medicaid Services, one in three children overall is covered by Medicaid.

Eleven-year-old Bailey is joining nearly 30 other children in championing access to pediatric care. The July 25-26 event includes one-on-one Congressional visits, a tour of Washington D.C. and a celebratory dinner to honor the child patients known as Family Advocacy Day “All Stars.”

In addition to legislative visits, pictures are worth a thousand words. This year a photo of Nevin Jamason, a cancer patient at Dayton Children’s, will be featured as part of the NACHRI 2011 Children’s Hospitals Photo Exhibit. The exhibit will be on display on Capitol Hill in the rotunda of the Russell Senate Office Building, Washington, DC(Constitution Avenue at Delaware Avenue). The rotunda is open to the public 8:00 a.m. to 8:00 p.m. daily. These stories in pictures will be seen by many elected officials and serve as powerful reminders to Congress to consider how legislative decisions affect children’s healthcare.

About the National Association of Children’s Hospitals

The National Association of Children’s Hospitals – N.A.C.H. – is the public policy affiliate of the National Association of Children’s Hospitals and Related Institutions (NACHRI). N.A.C.H. is a trade organization of 140 children’s hospitals and supports children’s hospitals in addressing public policy issues that affect their ability to fulfill their missions to serve children and their families. N.A.C.H. fulfills its mission and vision through federal advocacy, collaboration and communication designed to strengthen the ability of children’s hospitals and health systems to influence public policy makers, understand federal and state policy issues, advance access and quality of health care for all children, and sustain financially their missions of clinical care, education, research and advocacy.

For more information on Family Advocacy Day, visit www.childrenshospitals.net or follow us on Facebook at https://www.facebook.com/#!/pages/National-Association-of-Childrens-Hospitals/69789157983or Twitter, @speaknowforkids, #FAD11.

For more information, contact:
Jessica Saunders
Community Relations Manager
Phone: 936-641-3666
marketing@childrensdayton.org

 

We believe there are 18 ways we're just right for our region's kids! Learn more and share your story at justrightforkids.org.

Upcoming Events

The 1st Annual Logan X. Hess Stop Child Abuse Poker Run and Car Show will take place August 3. The ride begins at the Piqua American Legion and ends at Edison Community College. The car show will be at Edison Community College.

West Carrollton Police will be on hand to insure proper fit for all bike helmets.

Sample the distinctive flavors of the many cultures of Old North Dayton while enjoying entertainment, children's activities and a bicycle decoration competition for ages 9-16. All bike entries MUST be registered with the Dayton Police in advance at go.cityofdayton.org or at the Festival at 5:30 PM.

As part of the National Night Out, the Germantown Police Department will assist with the proper fitting of bicycle helmets for children without them.

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