Patient-Parent Support Groups and Educational Programs

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Support groups offered by Dayton Children’s are specially designed to meet the needs of children and their families. Our support groups will put you in touch with trained professionals as well as other parents and kids who have experienced similar situations. Education programs offered will help children and families handle the challenges of parenting, weight loss and quitting tobacco use.

For more information, call the number listed with each group. If you do not see a group that meets your needs, call Dayton Children's Family Resource Center at 937-641-3700.

Online support can be found through CaringBridge, a free service that allows families to set up personal web pages to update family and friends about their child's care. 

SUPPORT GROUPS

MEDICAL CONDITIONS

Asthma Care Training (ACT):  Asthma care training classes are offered for children ages 6 to 11 years old with asthma and for their parents to help them better manage asthma. Participants learn about triggers, warning signs and treatment of asthma by interacting through fun activities. This is a free three-week program, meeting two hours per week. Space is limited, so please register early. Call Belinda Huffman at 937-641-3266.

Cystic Fibrosis Parent Support Group:  Parents of children with cystic fibrosis can get education and support from this group. The group meets the third Wednesday of specific months from 7:00 to 8:30 p.m. at Dayton Children’s. Call Charlotte Lemming at 937-641-5300 or e-mail lemmingc@childrensdayton.org

Epilepsy Support Group:  Support groups for families affected by epilepsy meet at The Epilepsy Foundation of Western Ohio, 7523 Brandt Pike in Huber Heights, Ohio. For more information call 937-233-2500 or 1-800-360-3296. See www.ohioepilepsy.org.

Food Allergies - Families Educating Allergies/Asthma Together (FEAT):  Our mission is to provide support and education to families who have children with food allergies or asthma. This group has been formed to help families learn from each other, to share ideas and experiences with new families as well as to learn from medical professionals. Our goal is helping you help your child live a life with limits. FEAT meets on the 2nd Monday of the month at 6:30 p.m. Email or call for location. Call Belinda Huffman at 937-641-3266, email featgroup@att.net or call FEAT at 937-426- 4603.

Heart – Mended Little Hearts:  This is a support group for parents and families of children with congenital heart defects and heart disease. The program is dedicated to inspiring hope in those who care for children with heart disease or heart defects. The group meets bimonthly. Call 937-853-3105 or email rchalecki@woh.rr.com. See www.wrighthearts.org.

Hemophilia – Southwestern Ohio Hemophilia Foundation:  This group offers education and support to families affected by hemophilia and related bleeding disorders. Call John Gale at 937-298-8000. See www.swohiohemophilia.org.

Juvenile diabetes support group:  Diabetes support group for children and family. Call for date and time. There is no fee. Call Holly LeFevre at 937-641-5300 or e-mail lefevreh@childrensdayton.org for further information.

Seizure education:  Seizure education class is held Wednesdays at 10:00 am or as scheduled and is sponsored by Dayton Children’s Neurology/EEG department. Call to register at 937-641-3080.

Spina Bifida support group:  Adults with myelomeningocele and parents of children with myelomeningocele are welcome to attend this group, which is associated with the Miami Valley Spina Bifida Organization. The group meets every other month at 4801 Springfield Street in Riverside. Call 937-236-1122 or e-mail mvspinabifida@yahoo.com. See www.mvspinabifida.org.

GRIEF SUPPORT

Bereaved parent support:  Dayton Children’s bereavement team is available to meet the needs of our parents and families/friends before, during and after the death of a child. Our primary focus is to provide support to both the child and their family/friends. Resources available include chaplain service, medical/nursing support, counseling support and social work involvement. 

For more information call:

Charlotte Lemming at 937-641-5300 or e-mail lemmingc@childrensdayton.org

Stacy Hobbs at 937-641-4300 or e-mail hobbss@childrensdayton.org

Cecelia Sledge at 937-641-3000, ext 8980 or e-mail sledgec@childrensdayton.org

Tom O’Neill (Care and Comfort) at 937-641-4663 or e-mail oneillt@childrensdayton.org

Cindy Brown at 937-641-3000, x8934 or e-mail brownl@childrensdayton.org.

Compassionate Friends: This group is for parents whose children die at any age. See www.compassionatefriends.org.

• Miami Valley Chapter meets at Sugar Creek Presbyterian Church in Kettering on the third Wednesday of the month from 7:00 to 9:00 pm. Call 937-640-2621.   E-mail miamivalleyTCF@yahoo.com. See www.miamivalleytcf.com.

• Miami County Chapter meets at the Nashville United Church of Christ in West Milton on the fourth Thursday of each month from 7:00 to 9:00 pm. Call 937-238-0704 or email lawrences@mindspring.com. See www.miamicountytcf.com.

Oak Tree Corner:  This organization provides year-round support for children and teens ages 3 to 18 who have experienced the death of someone special. An adult parent or caregiver also attends the meetings. Support groups are held at three locations throughout Montgomery, Greene and Warren counties. Call for directions. The group is free. No insurance required. Call 937-285-0199. See www.oaktreecorner.org .

Perinatal loss support group:  This group is for parents who have lost a baby at any time during pregnancy or after birth. It is a drop-in support group. The group meets the second Tuesday of the month from 7:00 to 8:30 pm. Sponsored by Dayton Children’s. Call Mary Ann Swank, perinatal loss support group facilitator at 937-641-3463 or email swankm@childrensdayton.org.

Generations of Life:  This community bereavement resource center is a service of Hospice of Miami County, Inc. For more information, visit www.homc.org.  Call 937-335-5191.

HEALing Together (Help Endure a Loss):  This parent support group meets on the 3rd Tuesday of the month from 7:00 to 9:00 pm at Hilltop OB/Gyn in the Atrium Medical Center professional offices building in Middletown. Services are available on call 24 hours a day, seven days a week. Call our pager at 513-705-4056 or email HEAL@AtriumMedCenter.org.

Dayton Children’s is also aware of many community-based groups to help families cope with the loss of a child and sibling.  Please see Bereavement Care for a listing. 

HEALTHY LIFESTYLES (OVERWEIGHT, TOBACCO USE) 

STAND Stop Tobacco and Nicotine Dependency is a five week program designed to help teens quit using tobacco. Call Belinda Huffman at 937-641-3266. Cost is $25. See www.childrensdayton.org/cms/stand/ 

Summer camps for kids with special needs:  View our list for more information or see our 2011 summer camp brochure.

PHYSICAL AND SEXUAL ABUSE

Care House ( Montgomery County) and Michael's House (Greene County) are child advocacy centers offering parent support groups and child therapy groups throughout the year to help victims and their families cope with the impact of child sexual abuse.  Call Care House at 937-512-1670 or see www.thecarehouse.org and Michael's House at 937-318-1660 or see www.michaelshouse.org.

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