Doctors & Hospitals > Caring for a Seriously or Chronically Ill Child

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  • Balancing Academics and Serious Illness
    When your child has a serious or chronic illness, it's hard to think beyond the next treatment. But with planning and communication, you can help your child balance treatment and academics.
  • Birth Defects
    Many parents assume that all birth defects are severe or even fatal, but many are treatable, often immediately after birth - and sometimes even before the baby is born.
  • Camps for Kids With Special Needs
    There are many camp choices for kids with special needs. From highly specialized camps to regular camps that accommodate kids with special needs, options abound.
  • Caring for a Seriously Ill Child
    Taking care of a chronically ill child is one of the most draining and difficult tasks a parent can face. But support groups, social workers, and family friends often can help.
  • Chemotherapy
    Chemotherapy medications are used to treat cancer throughout the body by killing actively dividing cells. Learn more about chemo.
  • Chronic Fatigue Syndrome
    At least 1 million people in the United States have chronic fatigue syndrome, a condition that makes it difficult to perform everyday tasks. Read more about CFS.
  • Common Diagnoses in the NICU
    Learn about common NICU conditions, what causes them, how they're diagnosed, how they're treated, and how long babies might stay in the unit.
  • Cystic Fibrosis and Nutrition
    In addition to extra calories, kids with cystic fibrosis have some specific nutritional needs. Find out ways to help your child with CF grow healthy and strong.
  • Electronic Health Records
    By 2014, most U.S. health institutions will be digitally storing their patients' health information. Learn about electronic health records (EHRs) and what they'll mean for your family.
  • End-of-Life Care for Children With Terminal Illness
    End-of-life medical care focuses on preventing and relieving pain and suffering, and easing the fear and anxiety associated with serious illness.
  • Financial Management During Crisis
    Although the emotional price of raising a seriously ill child can be devastating, it's only part of the picture. Even during this difficult time, you have to consider the financial implications.
  • Financial Planning for Kids With Special Needs
    These 10 steps can help take the anxiety and worry out of your child's financial future and make sure that your child will be taken care of even after you're gone.
  • G-Tube: Parents Talk (Video)
    In this video, parents discuss caring for a child with a gastrostomy tube (G-tube).
  • Giving Teens a Voice in Health Care Decisions
    Involving teens in their health care can help prepare them for managing it on their own as adults.
  • If Your Child Has a Heart Defect
    Congenital heart defects are relatively common, affecting almost 1 in every 100 newborns in the United States.
  • Is a Clinical Trial Right for Your Child?
    Deciding to enroll your child in a clinical study will depend on its potential benefits and risks, as well as your child's particular illness. Learn more.
  • Is My Child Too Sick to Go to School?
    Find out what the experts have to say.
  • Managing Home Health Care
    When kids need intensive health care after they're discharged from the hospital, it's important that family and caregivers learn about the devices, equipment, and support they'll need.
  • Munchausen by Proxy Syndrome
    Munchausen by proxy syndrome (MBPS) involves a parent or caregiver misleading others into thinking that a child has medical problems by exaggerating, fabricating, or inducing symptoms.
  • Neurocutaneous Syndromes
    Neurocutaneous syndromes are genetic disorders that lead to tumor growth in various parts of the body. The focus of treatment is to prevent or minimize complications and maximize the child's strengths.
  • Neurofibromatosis
    Neurofibromatosis (NF) can cause tumors to grow on nerve tissue, producing skin and bone abnormalities. Learn more about NF, including how it's diagnosed and treated.
  • Occupational Therapy
    Occupational therapy can help improve kids' cognitive, physical, and motor skills and enhance their self-esteem and sense of accomplishment.
  • Palliative Care
    The goal of palliative medical care is to prevent and relieve pain and suffering while also easing stress, anxiety, and the fear associated with serious illness.
  • Physical Therapy
    Doctors often recommend physical therapy for kids who have been injured or have movement problems from an illness, disease, or disability. Learn more about PT.
  • Radiation Therapy
    Radiation therapy, also called radiotherapy, irradiation, or X-ray therapy, is one of the most common forms of cancer treatment.
  • Sending Your Child With Special Needs to Camp
    You've decided to send your child with special needs to camp this summer. Now what can you both do to get ready?
  • Speech-Language Therapy
    Working with a certified speech-language pathologist can help a child with speech or language difficulties.
  • Spina Bifida
    Spina bifida is a birth defect that involves the incomplete development of the spinal cord or its coverings. It's usually detected before a baby is born and treated right away.
  • Support for Parents of Kids With Special Needs
    You might have more on your plate than most parents, but it doesn't mean you have to do it all alone. Here's how to ask for help and avoid caregiver burnout.
  • Taking Care of You: Support for Caregivers
    It's common to put your own needs last when caring for a child you love. But to be the best you can be, you need to take care of yourself, too. Here are some tips to help you recharge.
  • The NICU: Parents Talk (Video)
    Hear from parents whose babies were in the NICU, and learn how they managed their lives during this stressful time.
  • Tracheostomy: Parents Talk (Video)
    Here, three parents share their tips and experiences on raising a child with a tracheostomy.
  • When Your Baby Has a Birth Defect
    If your child has a birth defect, you don't have to go it alone - lots of people and resources are available to help you.
  • When Your Baby's in the NICU
    The neonatal intensive care unit may seem like a foreign place, but understanding what goes on there can help reduce your fears. Here's how to familiarize yourself with the NICU.
  • When Your Child's in the Pediatric Intensive Care Unit
    It can be frightening whenever kids are in the hospital — and even more so when they're admitted to the pediatric intensive care unit (PICU). But a basic understanding of the PICU may make it a little easier to cope with.
 

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